Communication with young people in paediatric and adult endocrine consultations: an intervention development and feasibility study

Table 1 Characteristics of participants by study group

Characteristic	Pre-intervention phase	Intervention phase
		No interventions used	One or more interventions used	Total
Gender
Male	18 (47%)	4 (80%)	1 (20%)	5 (21%)
Female	20 (53%)	5 (26%)	14 (74%)	19 (79%)
Age group
11–13	8 (21%)	1 (11%)	3 (20%)	4 (17%)
14–16	12 (32%)	6 (67%)	6 (40%)	12 (50%)
17–19	12 (32%)	2 (22%)	4 (27%)	6 (25%)
20–25	6 (16%)	0	2 (13%)	2 (8%)
Diagnosis
Congenital adrenal hyperplasia	6 (16%)	3	3	6 (25%)
Hypopituitarism	15 (39%)	5	3	8 (33%)
Turner syndrome	8 (21%)	1	8	9 (38%)
Other^a	9 (24%)		1	1 (4%)
Total	38 (100%)	9 (100%)	15 (100%)	24 (100%)

^aOther includes: 6 late effects of cancer; 2 rare endocrine conditions; and 2 isolated growth hormone deficiency
The young people who participated in both pre-intervention and intervention phases were: 2 females aged 11–13 with Hypopituitarism, 1 of whom used an intervention; and 2 males aged 14–16 years, 1 with HP who used an intervention and 1 with Congenital adrenal hyperplasia who did not use an intervention
In 7 pre-intervention and 3 intervention consultations the young person was meeting the clinician for the first time

ISSN: 1472-6823