Inclusion criteria |
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Patients with congenital adrenal hyperplasia (CAH), Klinefelter syndrome, Turner syndrome, XX-/XY-DSD including MRKH |
Confirmation of diagnosis by chromosomal analysis, genetic test result, laboratory test or clinical examination |
Children between 8–13 years (according to their cognitive development from the age of 6 years) |
adolescents/young adults between 14–24 years |
Parents/ caregivers of children or adolescents with DSD newly diagnosed in the last two years |
Professionals who provide the patient education programme or have been involved in its development |
Peers who participate in the patient education programme as peer counsellors or were involved in its development process |
Written informed consent is available from patients (6Â years and older), parents/ caregivers, peers, and professionals |