Table 1 Respondent demographics for 2013 and 2017-18 online questionnaires
Cause of steroid-dependence | 2013 N = 1053 | 2017–18 N = 746 |
|---|---|---|
Autoimmune adrenal failure (Addison’s) | 51.5% | 71.4% |
Pituitary condition | 31.9% | 5.4% |
CAH (congenital adrenal hyperplasia | 5.9% | 0.1% |
Surgical removal of adrenals | 3.5% | 5.7% |
Secondary adrenal suppression | 2.9% | 7% |
TB, HIV or other infectious cause | 1% | 0.7% |
Adrenal haemorrhage | 0.1% | 0.5% |
ALD (adrenoleukodystrophy) | 0.1% | 0.2% |
Don’t know | 3.1% | 4.2% |
All primary | 62.1% | 82.4% |
All secondary | 34.8% | 12.4% |
Age, years, estimated mean | 50 years | 54 years |
Age range | (0–10) – (90+) years | (0–10) – (90+) years |
Years since diagnosis, estimated mean | 11.5 years | 12.4 years |
Years since diagnosis: range | (Less than 1) – (50+) | (Less than 1) – (50+) |
Female, % | 73% | 78% |
Educated to tertiary level, % | 60% | 56% |