Participation of adults with disorders/differences of sex development (DSD) in the clinical study dsd-LIFE: design, methodology, recruitment, data quality and study population

Table 7 Frequencies of missing questionnaires, sub-scores and items of standardized instruments according to diagnosis groups

	% Non-response to entire questionnaire
	Total	CAH	XY DSD	Klinefelter	Turner	Other^a
WHO-QOL-Bref	4.9	4.9	2.7	5.5	5.7	6.9
HADS	5.1	4.9	2.7	6.0	6.0	6.9
ASRS	5.4	4.9	3.2	6.4	6.3	6.9
AQ10	5.4	4.9	3.2	6.4	6.3	6.9
Rosenberg self esteem	5.6	4.9	3.6	6.4	6.6	6.9
CSQ4	6.3	4.9	3.2	8.3	7.0	11.0
UGDS female	24.3	14.2	16.2	44.0	22.3	30.1
UGDS male	47.2	51.1	33.9	32.1	65.8	43.8
ECR-RS^b	1.1	0.0	2.5	1.8	0.5	0.0

^aThese include the groups 47,XYY, XX gonadal dysgenesis, XX ovotestis, 46,XX, and 45,X/46,XY + other Y
^bThe ECR-RS was only answered by participants who answered “yes” to the question: “Have you ever had a “romantic” relationship?” A total of 700 participants (67.3%) answered yes, while 273 (26.3%) answered “no”, and 67 (6.4%) did not answer the question

ISSN: 1472-6823